Engaging the Rare Patient Online
Time: 3:00 pm
day: Conference Day Two PM
Details:
- Practical approaches to reaching the rare disease community at large
- How we deliver unmatched value to our patient and industry partners
- A taste of the “secret sauce” behind our organic community growth;
- Case study, like for instance some of our learnings from the 2024 National Rare Disease Survey, with a spotlight on ALS or our new 2025 treatment survey
